Why would someone spend so much time and effort pretending to be someone else, or in the Dirr case, 75 other people?
Munchausen by Internet is a term coined by Dr. Marc Feldman in 2000. It’s a pattern of behavior in which a person seeks attention and sympathy online by posing as someone who has a terrible illness. I emailed Dr. Feldman about this case and he said it was the most elaborate case of Munchausen by Internet he’s ever heard of, at least in a long time.
Here are some links on Munchausen by Internet. Clear some time out of your day because it’s a fascinating disorder and the cases are bizarre.
Wikipedia
Long Guardian UK article
Wired Interview with Dr. Feldman
Article about the Livejournal community fake_lj_deaths
2001 article about the Kaycee Nicole hoax, one of the first big cases
Obit article
Some interesting notes about all this.
Dr. Feldman told me that faking cancer is very common, both in real life and on the internet. He said in real life the motivation is scamming people for money, but online the primary motivation is for attention.
Emily didn’t (as far as we know) make any money off of this hoax. In fact, she spent a lot of money having bracelets made to draw awareness to Eli’s cancer. This is a message between a reader and “Dana Dirr.”
The reader above lives outside of the United States, so the postage was significant.
Another reader writes:
“I just a month or so ago, got a package of Warrior Eli Bracelets from “JS’s sister”. She put a SHITLOAD of time, energy and especially, MONEY into those things! She had to have spent THOUSANDS of dollars — each one is in a ziploc snack bag with the size written in marker, with a little print-out note that says “I asked Eli what he wanted for his 5th birthday. He said ‘Daddy, I want to cure childhood cancer so other kids don’t have to get sick like I did’ and the link to the lemonade stand site, and the links to “read Eli’s story” at caringbrindge and on facebook., with a little yellow ribbon in the loop, with a tiny safety pin, so the recipent can pin it on their coat.”
Another common thread in MBI cases is a vast knowledge of medical terms and procedures. Emily is a medical student (who claims to be on a leave of absence from school) and her mother is a nursing professor.
The vast majority of MBI sufferers are female, in their 20s and 30s, and often fall back into the same MBI pattern after their lies are exposed.
Dr. Feldman also let me know that BBC radio is doing a radio documentary on Munchausen by Internet starting June 4th. It will be accessible online here.
(Thanks to Reader R for the pic and everyone else who sent in bracelet stories!)